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OD Expert Group presents its policy recommendations for the revision of the OMP Regulation

On October 13, during the Rare Conversations Conference, our Experts presented the OD Expert Group’s policy proposals for a sustainable and resilient healthcare environment for rare diseases. These proposals are the result of intense collaboration among different stakeholders. We were delighted to share with the rest of the rare disease community our prolonged and committed […]

Posted on 14. October 2022

Press Release

OD Expert Group kicks off Phase 2

The multi-stakeholder European Expert Group on Orphan Drug Incentives (OD Expert Group) has officially announced the kick off of Phase 2 of its work on 29 March, during the DIA Europe session on “The European Expert Group on Orphan Drug Incentives: a Blueprint for Health and Pharmaceutical Innovation”.  On the same day, the Ministers of […]

Posted on 29. March 2022


OD Expert Group article published in Frontiers in Pharmacology

Following an intense year of discussion, work and exchanges with various stakeholders the work of the European Expert Group on Orphan Drug Incentives (OD Expert Group) was featured in an open article in the academic publication Frontiers in Pharmacology.   Today policy makers face the challenge to devise a policy framework that improves orphan medicinal […]

Posted on 10. January 2022


OD Expert Group response to the OMP public consultation

The OD Expert Group submitted its response to the Commission Public Consultation on the revision of EU rules on medicines for children and rare diseases, that took place between 7 May and 30 July. The response reflects the proposals of the final report of the OD Expert Group. In our response, we call for a […]

Posted on 2. August 2021


OD Expert Group launch event recording

The launch event of the OD Expert Group took place on 11 June and was entitled “How to address the unmet needs of rare disease patients by transforming the European OMP landscape”. The experts discussed with audiences, policy makers and panellists compelling ideas for the next decade of rare disease policies in Europe. More information […]

Posted on 21. June 2021