Visual

News, Events & Resources

News

OD Expert Group launch event recording

The launch event of the OD Expert Group took place on 11 June and was entitled “How to address the unmet needs of rare disease patients by transforming the European OMP landscape”. The experts discussed with audiences, policy makers and panellists compelling ideas for the next decade of rare disease policies in Europe. More information […]

Posted on 21. June 2021

Resources

OD Expert Group Recommendations

The multidisciplinary European Expert Group on Orphan Drug Incentives has developed fourteen innovative proposals along the entire lifecycle of orphan drug development to address the huge unmet needs in rare diseases. The proposals range from basic research to patient access, considering the clinical development challenges, regulatory approval procedures and access mechanisms

Posted on 21. June 2021

News

Video on the state of rare diseases in Europe

The European Expert Group on Orphan Drug Incentives has officially launched! The below video offers a brief overview of the state of #rarediseases in Europe and introduces the Expert Group tasked with examining how to improve the situation. Our Knowledge Partner, Copenhagen Economics , has produced this videoclip to disseminate the Expert Group’s findings. https://www.linkedin.com/feed/update/urn:li:activity:6809115496554803200

Posted on 11. June 2021

Press Release

European Expert Group on Orphan Drug Incentives unveils policy proposals to address unmet needs in rare diseases along the orphan drug development path

The multidisciplinary European Expert Group on Orphan Drug Incentives has developed fourteen innovative proposals along the entire lifecycle of orphan drug development to address the huge unmet needs in rare diseases. With over ninety percent of patients without a centrally approved treatment option, the need for innovation and research into orphan drugs is immense. Read […]

Posted on 11. June 2021