News, Events & Resources
News
The European Expert Group on Orphan Drug Incentives has officially launched! The below video offers a brief overview of the state of #rarediseases in Europe and introduces the Expert Group tasked with examining how to improve the situation. Our Knowledge Partner, Copenhagen Economics , has produced this videoclip to disseminate the Expert Group’s findings. https://www.linkedin.com/feed/update/urn:li:activity:6809115496554803200
Posted on 11. June 2021
Press Release
The multidisciplinary European Expert Group on Orphan Drug Incentives has developed fourteen innovative proposals along the entire lifecycle of orphan drug development to address the huge unmet needs in rare diseases. With over ninety percent of patients without a centrally approved treatment option, the need for innovation and research into orphan drugs is immense. Read […]
Posted on 11. June 2021
Resources
During our launch event on 11 June, a short presentation on the main findings of the policy paper has been shown.
Posted on 11. June 2021
Press Release
In light of the upcoming Pharmaceutical Strategy and ongoing Evaluation of the Orphan Medicinal Products (OMP) Regulation, the European Expert Group on Orphan Drug Incentives has been established to discuss and bring forward innovative proposals to stimulate innovation and foster research into new orphan drugs and therapies for rare diseases. In the driving seat of […]
Posted on 30. October 2020
We use cookies to improve your experience and track website usage. Okay.
Read more about Data Privacy.
