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European Expert Group on Orphan Drug Incentives unveils policy proposals to address unmet needs in rare diseases along the orphan drug development path

The multidisciplinary European Expert Group on Orphan Drug Incentives has developed fourteen innovative proposals along the entire lifecycle of orphan drug development to address the huge unmet needs in rare diseases. With over ninety percent of patients without a centrally approved treatment option, the need for innovation and research into orphan drugs is immense. Read […]

Posted on 11. June 2021

Press Release

Multidisciplinary work of experts launched to bring forward innovative proposals for the next decades to foster research into new orphan drugs and therapies for rare diseases

In light of the upcoming Pharmaceutical Strategy and ongoing Evaluation of the Orphan Medicinal Products (OMP) Regulation, the European Expert Group on Orphan Drug Incentives has been established to discuss and bring forward innovative proposals to stimulate innovation and foster research into new orphan drugs and therapies for rare diseases. In the driving seat of […]

Posted on 30. October 2020