News
On 26 April 2023, the Europe Commission published the EU Pharmaceutical Package proposal, revising the OMP Regulation as part of the revision of the EU pharmaceutical legislation. The revision aims to improve the existing legal framework to ensure access to affordable medicines in the EU, foster innovation in areas of unmet medical need, and enhance supply security […]
Posted on 11. May 2023
News
On March 22, MEP Pernille Weiss hosted us in the European Parliament to present our policy proposals for the revision of the EU Pharma legislation. We had an interesting and vibrant discussion on our perspectives and ideas for the future of rare disease in Europe. The video is now available, watch it now in case […]
Posted on 3. April 2023
News
On March 22, in a workshop in the European Parliament hosted by MEP Weiss, the OD Expert Group presented its Policy Proposals for the revision of the OMP Regulation. Thanks to everyone who participated in the event, whether live or remotely . The OD Expert Group believes in the vision of building a resilient ecosystem […]
Posted on 24. March 2023
News
After more than two years of work and close cooperation, we are honoured to announce the launch of the OD Expert Group policy proposals at a workshop in the European Parliament. The event will be hosted by MEP Pernille Weiss on March 22, 13.00-14.30 at the European Parliament and it will represent an occasion to build up […]
Posted on 8. March 2023
News Press Release Resources
On October 13, during the Rare Conversations Conference, our Experts presented the OD Expert Group’s policy proposals for a sustainable and resilient healthcare environment for rare diseases. These proposals are the result of intense collaboration among different stakeholders. We were delighted to share with the rest of the rare disease community our prolonged and committed […]
Posted on 14. October 2022
