News, Events & Resources


OD Expert Group – Workshop in the European Parliament

After more than two years of work and close cooperation, we are honoured to announce the launch of the OD Expert Group policy proposals at a workshop in the European Parliament. The event will be hosted by MEP Pernille Weiss on March 22, 13.00-14.30 at the European Parliament and it will represent an occasion to build up […]

Posted on 8. March 2023

News Press Release Resources

OD Expert Group presents its policy recommendations for the revision of the OMP Regulation

On October 13, during the Rare Conversations Conference, our Experts presented the OD Expert Group’s policy proposals for a sustainable and resilient healthcare environment for rare diseases. These proposals are the result of intense collaboration among different stakeholders. We were delighted to share with the rest of the rare disease community our prolonged and committed […]

Posted on 14. October 2022

Press Release

OD Expert Group kicks off Phase 2

The multi-stakeholder European Expert Group on Orphan Drug Incentives (OD Expert Group) has officially announced the kick off of Phase 2 of its work on 29 March, during the DIA Europe session on “The European Expert Group on Orphan Drug Incentives: a Blueprint for Health and Pharmaceutical Innovation”.  On the same day, the Ministers of […]

Posted on 29. March 2022