News
On March 22, in a workshop in the European Parliament hosted by MEP Weiss, the OD Expert Group presented its Policy Proposals for the revision of the OMP Regulation. Thanks to everyone who participated in the event, whether live or remotely . The OD Expert Group believes in the vision of building a resilient ecosystem […]
Posted on 24. March 2023
News
After more than two years of work and close cooperation, we are honoured to announce the launch of the OD Expert Group policy proposals at a workshop in the European Parliament. The event will be hosted by MEP Pernille Weiss on March 22, 13.00-14.30 at the European Parliament and it will represent an occasion to build up […]
Posted on 8. March 2023
News Press Release Resources
On October 13, during the Rare Conversations Conference, our Experts presented the OD Expert Group’s policy proposals for a sustainable and resilient healthcare environment for rare diseases. These proposals are the result of intense collaboration among different stakeholders. We were delighted to share with the rest of the rare disease community our prolonged and committed […]
Posted on 14. October 2022
Press Release
The multi-stakeholder European Expert Group on Orphan Drug Incentives (OD Expert Group) has officially announced the kick off of Phase 2 of its work on 29 March, during the DIA Europe session on “The European Expert Group on Orphan Drug Incentives: a Blueprint for Health and Pharmaceutical Innovation”. On the same day, the Ministers of […]
Posted on 29. March 2022
News
Following an intense year of discussion, work and exchanges with various stakeholders the work of the European Expert Group on Orphan Drug Incentives (OD Expert Group) was featured in an open article in the academic publication Frontiers in Pharmacology. Today policy makers face the challenge to devise a policy framework that improves orphan medicinal […]
Posted on 10. January 2022
