Orphan Drugs Expert Group launched Find out more
A multidisciplinary and intersectoral group Find out more
Our focus areas Find out more

Focus Groups

European Expert Group of Orphan Drug Incentives

The multidisciplinary and cross-functional expert group brings together representatives of the broad rare disease community, including researchers, academia, patient representatives, members of the investor community, rare disease companies and trade associations.

This group aims to become the source of ground-breaking ideas and potential solutions that will provide input to the Orphan Medicinal Products (OMP) Regulation Evaluation. The experts are currently working together to develop proposals to be unveiled by early 2021.